About Me


My name is Amélie. I want to share my life, my emotions, my hopes daily since I have a Lupus Erythematous Disseminated. Many people are wondering: oh well, I have never heard of this disease! In Latin, Lupus is translated by Le Loup or The Wolf.

Indeed, too few people know him and personally, I have this need to transmit and reveal what has been my life during the last ten years and still today. The disease was diagnosed me at 23 years old. Most of the people affected are women but sometimes men are also affected.

This disease is said: orphan.
We do not know the exact cause. Stability is possible, but we are never immune to a push. It remains invisible.

Sometimes you do not suspect that I'm sick. However, I take a heavy treatment and a great tiredness invades me. The symptoms initially settled down with great depression, weight loss, and a fever spurt. I also had pain and joint swelling. It is a rheumatologist who diagnosed me with the disease from the results of blood tests. Subsequently, a wolf mask appeared on my face in the form of tasks.

Then I was diagnosed with kidney disease. I almost lost both of my kidneys. Without treatment all vital organs can be affected.

It is an insidious disease that no one can suspect the dangers and consequences on our social, emotional and professional life. That's why, I'm going to share with you, 10 years of life. I think people with this disease will end up in the story. And, those who do not know it, can understand that diseases are not always visible. Thus, we may stop judging without knowing.

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