The term lupus means "wolf" in Latin (in German "wolf"). In consulting the medical writings of the ancients, it was noted that this term was used to characterize various skin conditions whose marks are reminiscent of wolf bites. It appears for the first time in medical literature in 916 AD concerning the illness of the Bishop of Liège, Eraclius, lupus, from which he was miraculously cured on the occasion of a pilgrimage to the tomb of St Martin in Tours.

History of Lupus

The observation is reported by Herbert of Tours: "He Eraclius, whom he calls Hildricus, suffered from an ulcerous disease, lupus, which manifested itself by a red line on the forehead." This type of skin condition certainly did not go unnoticed by ancient physicians. The frescoes of ancient Egypt give a fairly accurate reflection of the skin condition of the inhabitants of the Nile Valley. The study of medical papyri, dating from 1000-1700 BC, has made it possible to identify the semiological descriptions of many skin diseases.

Hippocrates, who lived on the island of Kos between 460-375 BC, described ulcerative lesions of the skin that he called Herpes Esthiomenos (Herpes spreading on the skin, Esthiomenos gnawing). Claudius Galen, a Greek physician practicing in Rome between 131-201 AD, used the name Herpes in a less vague sense to designate superficial ulcerations of the skin.

Persian physicians such as Raazes (900 AD) and Avicenna (1000 AD) described the condition under the name "formica corrosiva" which was retained by Paul Aegina, a Greek physician from the island of Aegina, and by Galen. In the writings of the famous School of Medicine of Salerno of the Middle Ages, we find the writings of Rogerius Frugarti who describes lupus characterized by swellings of the extremities. Rolandus devotes the term "noli me tangere" (do not touch me) for diseases affecting the face.

Bernard of Gordon, physician of the School of Montpellier (1305) also mentions the ulcerative form of herpes which he calls lupus. In 1500, Paracelsus introduces the term consolida lupi to describe a disease different from estthiomenos, fistula and cancer. He thus uses the term lupus vorax. Girolamo Mercurialis gives a description of lupus in his treatise "de Morbei-Cutanei" of 1572, the first work of dermatology published in Europe.

In 1750, the name lupus appeared for the first time in an American medical work "A method of Physics" by Philips Barrough. The use of the word lupus will be reserved for red eruptions of the face by Hans van Gersdorf of Strasbourg in 1577 and taken up by Jean Dolaeus in 1684.

In 1790, the British Robert Willan established a first classification of skin diseases in which we find the description of lupus which he clearly separates from "noli me tangere" and herpes. Willan wrote the first atlas of dermatology "Manual on Skin Diseases" which includes many color illustrations entirely drawn by hand, which will greatly delay its publication.

In 1808, a new edition was published in which Willan reserved the name lupus for a nodular eruption of the face that was complicated by ulcers. Two types of lupus were described, tuberculous lupus and lupus vulgaris. After Willan's premature death, his student Thomas Bateman continued his work. A new atlas of skin diseases was published in 1810 that would influence the history of dermatology. In France, the St Louis hospital in Paris developed a dermatology department in 1801, the direction of which was entrusted to Jean-Louis Alibert.

In 1832, he published a work entitled "Descriptions of Skin Diseases observed at St Louis Hospital" with 50 color engravings. In it, he describes "tartars" within which he isolates the reddening scab corresponding to the condition described by his predecessors under the name of lupus. Alibert specifies that esthiomene corresponds to Paracelsus' lupus vorax and Willan's lupus which are associated with tuberculosis.

In 1815, Alibert left the service of the St Louis hospital to Laurent Théodore Biett, a doctor of Swiss origin, who had studied dermatology with Bateman in London and who would therefore apply the classification of dermatoses according to his English masters. His collaborators, Alphée Cazenave and Henri-Edouard Schedel published in 1828 the first edition of the "Practical Abbreviations of Skin Diseases" in which the authors separated different forms of lupus: lupus which destroys on the surface, which destroys in depth and lupus with hypertrophy. They demonstrated that "noli me tangere" is of cancerous origin and therefore clearly separates this condition from lupus.

In the second edition of 1833, the chapter devoted to lupus is supplemented by a particular form which is described under the name of "Erythema centrifugum".

In 1851, Cazenave extended the description of centrifugal erythema by noting skin lesions with atrophy, telangiectasia, fixed erythema and he modified the name to "Lupus Erythematosus". Work on lupus then continued in Vienna, a center of Austro-Hungarian medicine. Ferdinand von Hebra was put in charge of the Dermatology clinic in this city in 1841.

In 1846 he described a condition affecting the face that he called "seborrhea congestiva". He described the very particular appearance of the malar rash as a "butterfly wing".

In 1866, Von Hebra would specify that the condition was identical to that which Cazenave had described under the name of Lupus erythematosus. He therefore rallied to Cazenave's thesis and definitively accepted this term which would be universally retained. The first illustration of lupus erythematosus appeared in 1856 in Von Hebra's Atlas of Skin Diseases which included numerous hand-painted illustrations by his collaborator, the Swiss Anton Elfinger.

In 1866, a young Hungarian doctor, Moriz Kohn, joined Von Hebra's service. A brilliant doctor, polyglot, talented orator, Kohn would perfect the teaching of his master Von Hebra.

In 1869, he published his first article on lupus erythematosus.

In 1871, Moriz Kohn obtained permission to change his surname to KAPOSI and it was under this identity that he continued to publish numerous works.

In 1872, in a detailed treatise, he described the existence of two types of lupus: discoid lupus, exclusively cutaneous, and a disseminated form associating systemic visceral complications including subcutaneous nodules, arthralgia, lymphadenopathy, fever, weight loss, anemia. He called this form "disseminated and aggregated lupus erythematosus". Confusion arose about the adjective disseminated which is related to the cutaneous evolution and not to the multivisceral (systemic) character of the condition.

In 1902, Sequira and Baleau in London published a review of 71 cases of lupus, including 60 discoid and 11 disseminated. They noted the existence in this latter group of a frequency of acroasphyxia (which would later be better known as Raynaud's phenomenon), renal damage as well as pleurisy (pericarditis. Jadasshon, a German dermatologist practicing in Berne, Switzerland, contributed in 1904 to the replacement of the term "disseminated lupus erythematosus" by that of "systemic lupus erythematosus" or better "lupus disease". Sir Williams Osler would confirm the concept of systemic lupus thanks to numerous publications between 1895 and 1904. In 1936, CK Friedberg described the existence of lupus disease without cutaneous manifestations.

Systemic lupus seems to have existed since ancient times. Indeed, a group of researchers under the direction of Marvin Alison and Alejandro Pezza from the Inca Museum in Peru were able to carefully examine a mummy of a 14-year-old girl, dating from 890 BC, whose examination revealed alopecia, pleurisy and pericarditis, glomerulonephritis compatible with systemic lupus. Reproductions of lupus disease are also found in paintings by old masters.

Thus, Rembrandt in 1634 painted the portrait of Maria Bockenolle, the wife of Pastor Elison, in which one can notice the red rash on the face and the joint deformation of the hand.

At the Louvre Museum, one can admire the painting by the French painter Simeon Chardin from 1740, a copy of which from 1746 is in the Hermitage Museum in St. Petersburg, the "Benedicité" on which one can observe the erythema of the little girl's face.

The 20th century opened the era of lupus biology. In 1910, Hank reported the positivity of the Wasserman complement fixation reaction with the serum of lupus patients. In 1846, Hargraves discovered, in the sternal marrow of lupus patients, the presence of particular cells consisting of neutrophil polymorphonuclear cells having phagocytosed the nucleus of another cell which were called LE cells. The following year, Haserick showed that the serum of lupus patients was capable of causing the formation of LE cells with cells from the marrow of normal subjects.

In 1954, Peter Miescher, a Swiss immunologist, succeeded in absorbing serum factor LE with thymus cell nuclei, thus demonstrating that the factor was an anti-nuclear antibody.

In 1957, it was shown that these antibodies reacted with nucleoproteins, that is, the constitutional subunit of chromatin. The same year, Maxime Seligman in Paris showed that the serum of lupus patients causes a precipitate with DNA. This was confirmed by the German Deicher in Henri Kunkel's laboratory and by the Italian Ceppelini. Thus anti-DNA became the specific serological markers of lupus. An important discovery was to revolutionize the practice of immunology.

This is the development by Coons in 1953 of the immunofluorescence technique.

Friou applied it in 1957 to the search for anti-nuclear antibodies but it would not become widespread until 1968 when the first microscopes equipped with UV lighting became widespread in laboratories. From 1975 onwards, the search for anti-nuclear antibodies was carried out on Hep-2 cells, a substrate still used today.

In 1961, Anderson in Glasgow, will show that the antibodies present in the serum of lupus patients precipitated soluble extracts of thymus nuclei. This is the start of work on anti-ENA antibodies for "Extractable Nuclear Antigens", i.e. soluble antigens of the nucleus. In 1966, Tan identified in a lupus patient, Mrs Smith, a first anti-ENA, which was called anti-Sm. Other specificities will be identified in the following years. The sophistication and standardization of anti-nuclear antibody detection techniques will lead to genuine diagnostic progress in lupus disease.

Dermatological lupus has been the subject of treatment attempts since antiquity. At the beginning of the 15th century, the German physician Johan Tollat ​​von Vorchenberg wrote "for lupus caprifolin", that is to say honeysuckle. Medicine at the time used a very rich pharmacopoeia borrowed from the plant and mineral kingdoms. Jonathan Hutchinson, 1880, proposed cod liver oil, arsenic, zinc chloride and mercury nitrate. Anderson added the application of iodine. Gold salts were introduced in 1913 for the treatment of discoid lupus. For that of systemic lupus, quinidine was introduced by JF Payne in 1894, aspirin was used in 1899 by Radcliffe-Crocker and quinine by Mac Lead in 1908.

In 1956, plaquenil was introduced, which is still widely used today.

In 1935, Edward Kendall isolated cortisone, which was used to treat lupus by Hensch. From 1952, immunomodulators such as cyclophosphamide, mycophenolate, azathioprine, and then monoclonals such as rituximab were used. Other therapies are under development.

The first descriptions of lupus focused on dermatological manifestations. Various varieties of cutaneous lupus have been described by dermatologists.

At the end of the 19th century, it was realized that some lupus could be complicated by diffuse visceral manifestations and the dermis of systemic lupus erythematosus replaced that of disseminated lupus erythematosus. Thanks to the development of our knowledge in immunology, it was demonstrated at the end of the 20th century that lupus disease is an autoimmune disease. Immunological tests were developed that allow a precise diagnosis of systemic lupus. On the other hand, the knowledge acquired about the etiology of the disease will allow the implementation of increasingly effective targeted therapies.

Prof. René-Louis HUMBEL

Laboratory of Immunopathology, Luxembourg

BIBLIOGRAPHY:

• 1. Virchow R. Historical Notes on Lupus. Arc Pathol Anat 1865; 32:169-143.
• 2. Russel B. The History of Lupus Vulgaris: Its recognition, Nature, Treatment and Prevention.Pro Royal Soc Med 1954; 48: 127-132.
• 3. Smith CD The History of Lupus Erythematosus: from Hippocrates to Osler.Rheum Dis North Am 1988; 14:1-14.
• 4. Hoshberg MC. The History of Lupus Erythamotosus. Md Med J 1991; 40:871-873.
• 5. Gamarra A. An historical review of Systemic Lupus Erythematosus in Latin America.Med Sci Monit 2004; 10:171-185.
• 6. Mallavaapu RK, Grimsley EW. The History of Lupus Eythematosus. South Lad j 2007; 100:896-898.

 Hey there! If you’re reading this, chances are you or someone you love is navigating the complex world of diabetes. I want to share my journey with you—my highs and lows, my triumphs and challenges. Hopefully, my story can offer some comfort, understanding, and maybe even some helpful tips along the way.

The Diagnosis: A Life-Changing Moment

I still remember the day I was diagnosed with diabetes like it was yesterday. I was feeling unusually thirsty, tired, and had to go to the bathroom all the time. After a routine check-up and some blood tests, my doctor gave me the news: I had diabetes. My world turned upside down.

Q: What are the common symptoms of diabetes?

A: Common symptoms include excessive thirst, frequent urination, extreme fatigue, and blurred vision. If you’re experiencing any of these, it’s important to see a doctor.

The Early Days: Adjusting to a New Normal

The first few weeks after my diagnosis were the toughest. I had to learn how to monitor my blood sugar levels, take my medication, and drastically change my diet. It felt overwhelming, and I often wondered, “Why me?”

Q: How do you manage blood sugar levels?

A: Managing blood sugar involves regular monitoring, taking prescribed medications or insulin, and maintaining a healthy diet and exercise routine. It’s crucial to work with your healthcare team to find the right balance.

Finding My Rhythm: Embracing the Changes

Over time, I found my rhythm. I discovered that a balanced diet and regular exercise made a huge difference in how I felt. I started cooking more at home, focusing on fresh, whole foods. Exercise became my friend—not just for my body, but for my mind too.

Q: What kind of diet is best for managing diabetes?

A: A diet rich in vegetables, whole grains, lean proteins, and healthy fats is generally recommended. Avoiding processed foods and sugary snacks helps keep blood sugar levels stable. Consulting with a nutritionist can provide personalized guidance.

The Support System: Leaning on Others

One of the most important things I learned is that I couldn’t do it alone. My family and friends became my biggest supporters, and I joined a local diabetes support group. Sharing my experiences and hearing from others who understood my struggles made a world of difference.

Q: How can you find support when dealing with diabetes?

A: Support can come from many places—family, friends, healthcare providers, and support groups. Online communities can also be a great resource. Don’t be afraid to reach out and ask for help when you need it.

Living Well with Diabetes: A Continuous Journey

Living with diabetes is a continuous journey. There are good days and bad days, but I’ve learned that it’s okay to have setbacks. What’s important is to keep moving forward, stay informed, and take care of yourself.

Q: What can you do to stay positive while managing diabetes?

A: Staying positive involves maintaining a balanced lifestyle, setting realistic goals, and celebrating small victories. Mindfulness practices, such as meditation and yoga, can also help reduce stress and improve your outlook.

A Message to You: You’re Not Alone

If you’re dealing with diabetes, remember—you’re not alone. It’s a challenging road, but with the right tools, support, and mindset, you can live a full, healthy life. Don’t be afraid to reach out, ask questions, and take it one day at a time.

Q: What’s the most important thing to remember about managing diabetes?

A: The most important thing is to stay proactive and informed. Regular check-ups, monitoring your health, and making lifestyle adjustments are key. Remember, managing diabetes is a marathon, not a sprint.

The Best Foods for People with Diabetes

As someone living with diabetes, I've learned firsthand the impact that diet can have on managing blood sugar levels and overall health. Finding the right foods to eat can sometimes feel like a daunting task, but I've discovered that making smart, informed choices can make a big difference. Here, I'd like to share some of the best foods I've incorporated into my diet to help manage my diabetes effectively.

1. Leafy Greens

Leafy greens like spinach, kale, and Swiss chard are incredibly nutrient-dense and low in carbohydrates, making them an excellent choice for managing blood sugar levels. They're rich in vitamins, minerals, and antioxidants.

Q: Why are leafy greens beneficial for diabetes management?

A: Leafy greens are low in calories and carbohydrates but high in fiber, which helps regulate blood sugar levels. They also provide essential nutrients that support overall health.

2. Berries

Berries such as blueberries, strawberries, and raspberries are packed with antioxidants, vitamins, and fiber. They satisfy my sweet tooth without causing a spike in my blood sugar levels.

Q: Can people with diabetes eat fruits like berries?

A: Yes, berries are a great option because they have a lower glycemic index compared to other fruits, meaning they have a smaller impact on blood sugar levels.

3. Whole Grains

Whole grains like quinoa, brown rice, oats, and barley are much better for blood sugar control compared to refined grains. They provide steady energy and are high in fiber.

Q: What makes whole grains better than refined grains for diabetes?

A: Whole grains are less processed and retain more nutrients and fiber, which slows the digestion and absorption of carbohydrates, helping to prevent blood sugar spikes.

4. Lean Proteins

Including lean proteins such as chicken, turkey, fish, tofu, and legumes in my diet has been essential. They help keep me full and provide the necessary nutrients for muscle maintenance without adding excess fat.

Q: Why is lean protein important for people with diabetes?

A: Lean proteins help stabilize blood sugar levels by slowing the absorption of carbohydrates and promoting satiety, which can prevent overeating.

5. Nuts and Seeds

Nuts and seeds, such as almonds, walnuts, chia seeds, and flaxseeds, are excellent sources of healthy fats, protein, and fiber. They make for great snacks and can be easily added to meals.

Q: How do nuts and seeds benefit blood sugar control?

A: The healthy fats, protein, and fiber in nuts and seeds help slow down the absorption of sugar into the bloodstream, which helps maintain stable blood sugar levels.

6. Non-Starchy Vegetables

Non-starchy vegetables like broccoli, cauliflower, bell peppers, and zucchini are low in calories and carbohydrates but high in essential nutrients. They're versatile and can be included in many dishes.

Q: What is the advantage of eating non-starchy vegetables for diabetes?

A: Non-starchy vegetables have a minimal impact on blood sugar levels and provide vital vitamins, minerals, and fiber that support overall health.

7. Greek Yogurt

Greek yogurt is a great source of protein and probiotics. I enjoy it as a snack or breakfast option, often adding a handful of berries or a sprinkle of nuts for added flavor and nutrition.

Q: Is Greek yogurt a good choice for people with diabetes?

A: Yes, Greek yogurt is higher in protein and lower in carbohydrates compared to regular yogurt, which helps keep blood sugar levels stable. Just be sure to choose plain, unsweetened varieties.

8. Avocados

Avocados are rich in healthy monounsaturated fats, fiber, and a variety of vitamins and minerals. They add a creamy texture to meals and help keep me feeling full longer.

Q: How do avocados help manage diabetes?

A: The healthy fats and fiber in avocados help slow digestion and improve blood sugar control, making them a great addition to a diabetes-friendly diet.

9. Fish High in Omega-3 Fatty Acids

Fish like salmon, mackerel, sardines, and trout are high in omega-3 fatty acids, which are beneficial for heart health—a key consideration for people with diabetes.

Q: Why are omega-3 fatty acids important for people with diabetes?

A: Omega-3 fatty acids reduce inflammation, improve heart health, and may help improve insulin sensitivity, which is crucial for managing diabetes.

10. Beans and Legumes

Beans and legumes such as lentils, chickpeas, and black beans are excellent sources of plant-based protein, fiber, and complex carbohydrates. They provide sustained energy and help keep blood sugar levels stable.

Q: Are beans and legumes good for blood sugar control?

A: Yes, their high fiber content slows the digestion and absorption of carbohydrates, which helps maintain steady blood sugar levels.

Incorporating these foods into your diet can make a significant difference in managing diabetes. Remember, it's all about balance and making informed choices. If you have any questions or need more personalized advice, don't hesitate to reach out to a nutritionist or your healthcare provider. Together, we can navigate the journey of diabetes management and live healthier, happier lives.

Thank you for reading my story. I hope it resonates with you and maybe even helps you on your own journey. If you have any questions or just need someone to talk to, don’t hesitate to reach out. We’re all in this together.

Yesterday: Saturday, beautiful day, not too much sun, a little wind, the perfect day for shopping, for the young lupus completely broken that I am. Direction the Four Times Shopping Center in La Defense, in addition there was not a lot of people, it's top shopping without jostling, except perhaps at the H & M swimwear department: 9 € a top and a bottom! But I have not cracked.

A few purchases and 2h later, Claudia was no more!!! I exceeded my "daily market quota", the famous 2h. Pain in the feet, calves, thighs, lower back, back, arms, forearm, shoulders, in short nothing escaped. But I wanted to persevere, or rather abuse, and I stayed 1h more: 1h of self torture. Where I really regretted not being back? When leaving the Castorama of the Four Times, the vigils prevented me from going out, because according to them I opened and stole a pack of screwdrivers. Oh my god I wonder how I did to stay calm, because that kind of accusations to the con, I usually get carried away quickly. Finally? No pursuit and of course I did not steal screwdrivers that people can be stupid sometimes.

The quota of 2h was largely exceeded with all these events: the time lost in Casto, the return time to go home. Finally on the way back, I spent one of my worst nights of 2010, with this shoulder pain in-su-por-ta-ble!!! I have often had this pain, it's a dog's pain, it's persistent, and the inspiration is even worse. I almost want to tear it away and it stayed until this morning.

This is the pain that I'm always afraid to have, so the feeling is not liveable! Nooo I do not abuse, we do not hold in place, we just want to close our eyes and hope that it goes back by reopening, but it's not so simple!

Plaquenil? It does not really affect me... A radio? We see nothing! A massage? It relieves the time of the massage, but when it stops, it comes back.

So where was I wrong? To have wanted to go out, to make my Saturday a banal day as for so many other people? Where I was wrong from the moment I exceeded my quota? Because if that's it, so stay at home, because going out for 2 hours of pseudo fun: so much nothing to do with his day, and stay at home. 

I just wanted to make me happy , it's not often that I go out, shopping is rare, and now 3h have completely broken me in 15! And after? We must lie to ourselves with these kind of little phrases that are supposed to cheer us up, like: "we do with!", Or, "we make go!"

I want to do "with", provided that this pain con fuse peace to my shoulder :(

And passions then? The hobbies?

At the end, we have the right to have what passion for having an LED? Well yes, because sport is a little dead, with our heart problems, asthma, joint problems and / or muscle, the less we do, the better we go! So what? Drawing and painting? I drew a lot at one time, but today I have very (very) badly the arm, fingers and wrists for.

So, writing? Same, as typing on a PC keyboard by the way, it hurts, it is tiring force. And like any activity that hurts, fatigue etc., it puts me in a state of atrocious rage, because things I want to do, but I can not! One of my biggest obsessions is to drop something on the floor , because it's quite an art of bending down without getting tired! lol ahlala Sad tragic world!!!

So, I found the picture. Reflex, and presto photos! It's not too tiring in itself, it's nice, and it's beautiful. But hey, it's mostly a solitary activity, outdoor, to practice in good weather.

Me: I would like to do a sport, any one, and go home without having the back fart and aches that will not leave me so soon. I wish I could write, by hand or on pc without hurting hands at the goal of a quarter of an hour.

I would like to do a lot of activities, and be in shape, at least a little more vitality, be able to get up from my seat without having the head spinning, a thigh that is "crack", a neck that hangs, a foot cramp etc. One of the hardest things, I think it's when I'm alone at home, with no activity to take care of: I start thinking about everything I could do, that I do not not.

The friends? lol let's talk! At the time "60mg cortisone / day", I had to make a cubic meter something like that! When you are fat and ugly, you represent no danger for girls of your age, we are nice full with you, ah yes :D

But when you go to 2mg / day because you have a cool hemato but crazy enough around the edges, and you lose in 3 months all the weight in excess, and you end up with a size 36 and 55kg for 1m65, and you can eat without getting fat, there is a problem for "girlfriends".

Because they have all grown, and I, minci... So it is based on criticism: "you are anorexic, you eat a lot that before us, at home you must make you vomit etc". Why do they think that? Surely because my dark circles disturb them ohlala! rings that many lupus have also lol and they know my dirty eating habits, and are perhaps jealous who knows. But there's nothing to be jealous of, I would still prefer with weight problems for life, and no LED.

And after, the disease? I could talk to them every day for hours, they are way too stupid or stupid I do not know, to keep 1 / 10th of the definition of "Lupus". Nah I'm not really surrounded, our reports is mostly based on bad reviews, but do not think that I let myself do, when it goes too far, I know open!

To summarize, I feel damn when it is ugly like today, that there is not much to do, or at least I can not do much. And this cold that hurts, which brings a lot of pain: it's not great. It's even downright depressing :-(

So: ideas of hobbies, for a lupus pseudo anorexic, according to these dear friends? (And no, I'm not anorexic lol I just found my body and metabolism before the cortisone)

I am a student, I work at night for the town hall of my city, with kids in "school failure". In 2 weeks, Saturday, May 29, we have a party, a kind of carnival, where we are supposed to parade, dance, walk in the streets of the city, from 12h to 19h.

Big problem: how am I going to do? How can I keep more than 1 hour to walk? From experience, I know it's useless to talk to my boss, because I work with one of my friends, who was supposed to know since 2002, when I told him about it, that I suffer from an LED. However, she "forgot" it, and when it was about a month ago she asked me what I had in the face (mask of the wolf), and that I replied that it was a lupus, she looked surprised that I did not speak to her before. Thank you for being my friend, it's great (pseudo) yupi friends!

So talk to the superior, even if I get along well, so that he understands nothing: no thank you.

People in general react to me as my father: According to him, I am in good health because: I get up in the morning, I shower, I feed myself, I have a social life. He does not understand anything, although he has been aware of my state of health since 1996. For him and for many people, since I found a normal platelet count following my removal of the spleen : all is fine But we know that no. The purpura was just one problem among many others, the e having platelet today, does not make me a miracle lupus.

May 29, I'm going to be broken, KO, crumbling, this fucking shit Saturday that's already getting on my nerves, because I know I'm not going to hold more than 1h, will sign my death sentence, oh yes it's going to be unsustainable, I can already see the back farting, limping, with my bones that will crack everywhere, ohlala...!

I have a cane, I use it from time to time, but I have never used it before them. I am afraid that my position and my skills will be challenged with respect to my health, especially that in June, we will have a meeting to find out who is left, and who will leave next year. I would be in my last year of BTS, a job of 2h / evening would be top, just to make me money but move a little too, but if they realize how much I can be limited in my movements, they may not want me anymore :(

It is unfair that the disease is so misunderstood. I do not even mention the fact that no one knows it, but those who know it, like my father for example, or some of my friends, ignore it. They have nothing to wank! (It's not vulgar! It's totally realistic, and therefore justified.

News and a sport to practice, even for us!

It is said that money is not happiness and it is true! Nothing would make me happier than spending a whole day in good health: by that I mean without pain or fatigue. It happens to me from time to time, but it's so rare! Once or twice a year...

Ahh when I hear some people say: "I'm tired, I spent the day to move in all directions, I'm exhausted", how I would like to be tired too for the same reasons and tired for doing things, and not dead "for nothing"! 

I have no friends, no one to talk to, talk about futile things like most girls of my age, no girlfriends with whom to talk to dudes etc. I'm not bad, I'm not so bad that nobody wants me. So what? The girls I was hanging out with do not want to go to school anymore because I have become too much of a watcher for the guys on the street, since I went from a 44 to a 36 (and 60mg of corticoids / day, at 2mg). I've "melted", and it bothers them: "Do you think you're at the beach to put on a tank top?", "Do you believe where to put a dress?". Frankly, if it is to hear such comments completely derogatory and useless, I still prefer to stay alone. I would say that it's people to whom I explained my health problems six years ago, and that except "and that's it, it's nothing like that!", I'm entitled to nothing other. Today, they do not even remember it.

You do not find that a little bit abused? lol it's stupid and foolish to be rejected because we're 55kg, whereas when I was 75kg, everyone liked me. My character has not changed so far, I am even more friendly and open today.

I'm ready to "lie", basically not to shout, to walk "properly" in public, people are stupid and suddenly are embarrassed by some attitudes that I could have , I never complained to my friends. But it does not happen! I must believe that I am not made to befriend people!

If I can not have friends, I must find myself a new occupation, something: cool, not tiring, which is an interesting minimum (at least for me). And I found! Fast no!

Did you see the ad for this new style of golf, the street golf, made in Decathlon? I cracked for 2 things: it's colorful lol, and: no need to bend down, nor farting back : just take golf ball with the club: there's a place provided for this purpose, nickel for people like us lol.

It's called "Ygolf". I tested, and I honestly found it fun, fun, and there are two clubs (to play 2), 4 balls, and a target / hole. It is light lol other good point, it is transported without being burst so far. Play this, in a large park with hills, in the early evening when it is always a bit warm, but the sun starts to leave: it is super nice and relaxing. It is a style of golf made to relax and laugh, very far from the classic golf! 

No need for superhuman strength, the balls are not rigid, the clubs are light, the carrying bag is practical. In short, I am happy, I will be able to practice a funny sport: street golf, within the limits of my state of health of course! 

I who complained a while ago of not having an occupation, I found one, which replaces a lot of useless things, and which fills my free time. If you have other ideas, just as tiring, I listen to you :-)

How beautiful and magical these holidays! No problem, no confusion, and a pretty destination! Departure in the evening by car from the Paris region, for an arrival on Toulon early morning, to take the ferry that was to take me to Corsica: Everything went absolutely well, the road is long (+/- 800 KM) but arrived at km 400 problem! problem!

The speeds of my car have begun to let go. The 5th is in neutral, the 4th, does not want to engage lol and speeds are "wedged" without being fully engaged. Super hard of them pass, had to do both hands while trying not to break the box! It would have been more than tragic there.

I arrive somehow on the boat after having traveled 350kms like that. Leaving the boat it took me 15 minutes to put the 1st and so good! 

On Ajaccio, once installed, I call my assistance that sends me a tow truck right away. Super bad guy, who tries to make me believe that it's my clutch that has let go, and there, the bums start! We take my car to Volkswagen, who tell me the same thing. Except that I insisted on checking the oil of the box. 3 days to ride in a replacement car, 3 days to learn that it was "just" box oil! The emptying, the car rolled like clockwork and from there, that happiness in this holiday!

I love the beach! I was spoiled there : the beaches are beautiful there , the water is transparent / turquoise blue, it's superb! The sea is warm (warmer than cold!), And the beaches are for some very difficult to access by car (crevasses enermous ground, no tar etc) and suddenly, they are almost deserted! 

The views of the mountains are superb too. The fans of gastronomy will be disappointed by cons: the restaurants are 80% pizza and paws... bof we find all year round on Paris paws and pizzas lol. The rest of the holidays went well and I found Paris (too depressing) on September 4th, sniff! To speak health, no problem of the mask style of the wolf or others. Just the same huge fatigue and pain, except that, nothing to report, and it's pretty cool! I was able to tan, not to change the sun LOL, I have a hard time avoiding it oddly: p

What an absence!

I have been away for a long time from my blog, but there is an explanation for everything. First, my BTS (1st year), he was in danger lol I had about 5 months to complete 2 semesters of courses and homework because of my late registration. So, I was less often present behind the pc, hence my absence from the blog and its Facebook page.

The school year is over, I am pleased to announce that I have validated , with the small average of 13.5. Could not do better in 5 months lol I had too little time! But I'm already asking a lot of questions for next year! Still courses via the CNED, or alternation? Who says alternation, says school / work, and I'm afraid of the fatigue that it can cause, because after 2 weeks I know that I will be OK!

If you have any opinions or suggestions: I'm listening! Working with the kids took me a lot of time too with the extra hours , and end of year meetings, but all that is over too: Long live the holidays but, I still do not know where to pass them mine mdr ^^ (again, if you have suggestions.....!)

I had a few moments of tiredness, fever, re-tired, fed up sometimes too (if so!: O) but now I intend to take advantage of the 2 months of vacation to re-po-ser! Then, I would like to make a small reminder of Saturday: Lupine lunch , in a creperie in Montparnasse. It was nice like everything, I met in "real", great people and very nice! We put that back?

Back to school after the holidays was not easy! I missed a lot of my blog, and also my facebook page. In fact, I'm pushing, suddenly, I'm sick H24. For 1 month, I did not stop coughing, coughing. Accompanied by fever (once a week, it's accurate lol) and cramps with or without fever. Currently, the cough is almost gone, the fever less rarely (once a month), but the pain is more present than ever. About once a week I am stuck with pain, I can not even move a finger! If I lie down, only I can not get up. If they help me up, I walk like a granny, step by step, back all bent and it's far from glamorous! 

And it's a big vicious circle: I lie down to rest, but the more I rest, the more it gets worse. On the contrary, if I try to move, walk, it passes over the hours alone. But you have to have a lot of courage to get up and move while suffering martyrdom.

And if no one sees that I am alone, in my room, in the vegetable state that does not move, well I can spend 24 hours without giving news and no one worries XD! These months it's not going at all! So I'm hyper late course and homework, I missed the job too, it's pretty chaotic! 

I had not really had a big push since 2004, and here I must say that I am served! When I'm in remission I do a little anything. I go out, I'm having fun, I sleep if I have the time or so much worse, I rest more, basically I do not care at all : - / ben, we pay dearly after -_- "it will teach me..!!! I hope that you are well, that there are not too many thrusts in the air ;-) Give your news!

It's all arranged...

Since the beginning , I chained: a cold that lasts 2/3 months, an otitis that lasts 1 month, and more recently, a loss of 8 kgs in 10 days, I hallucinated. Things seem to be better now: otitis almost gone, the cold causing me more fever, I do not care, and I lose more weight! not at the rate of almost 1kg / day lol anyway!

That was the news "health"! In a completely different field: school, studies are going well. But it's a year more than stressful: exams in May loool I still have not 5 months of revisions ... finally manage to combine homework (there are 30 in all, I have already returned 13. ..) + internship + reviews + my job and it's not going to be easy! 

For the moment I'm just homework + job loool down revisions in the middle of December, and the internship, I should start it (if all goes well) from January: creation of an event (neighborhood party ) + creation of a "mini-journal". I would say more next time ;-)

Soon the holiday season: my friends, I would be absent from Facebook from Friday, and until next year lol January what: p because I'm going to Lisbon, for the end of the holidays year, even in case of snow, I think my flight should not be canceled, priority being given to departures. Departures on airports not "blocked" by the snow